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few things are as exhausting as navigating the us healthcare systemOn twitter.com
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well-meaning friends and family keep asking me what they can do to help, and the answer *would* be “find me a doctor with […] specializations” but that’s not possible for so many reasons.Permalink On twitter.com
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to start, when you have a rare illness you need to know SO much about it in order to find the right doctor. on top of that, there’s a major MD/DO shortage so being a new patient is almost impossible. oh also insurance coverage is a fun hurdle to leap when your legs don’t work.Permalink On twitter.com